Which resources do patients and their environment have for MPS I?

Just as every patient with MPS I is unique, every patient has their individual needs. There are also a varied number of internal and external tools available to meet the challenges of life. We think of family, friends, fellow sufferers with MPS I, doctors and other health experts. An extensive network of local, national and international aid groups also helps people to take their lives into their own hands. Below is a list: